Saturday, March 28, 2009

Just for You!! ("you" know who you are!)

A couple months ago I started scrapbooking. I never knew how fun and addicting paper crafts are!! Soon I realized that scrapbooking is very time consuming and it gets expensive having to get pictures developed all the time, when you don't have pics it's hard to scrapbook!! So my good friend introduced me to card making. I have fell in love with it! Even though its not much cheaper, it takes less time for the finished product and I like that! So here are a few pictures of my recent cards. I am still learning new techniques, but am having a great time with it!








Monday, March 23, 2009

March for Babies



This year in loving memory of my daughters I have started a March for Babies team.




I know that with the way the economy is right now it is hard for people to donate. Please remember, a donation does not have to be much! The March of Dimes actually started with Franklin D. Roosevelt during the Great Depression. In January 1938, alarmed by decades of worsening polio epidemics and the terrible toll the virus was taking on America's young, President Roosevelt established the National Foundation for Infantile Paralysis. The National Foundation emphasized the nationwide significance and non-partisan character of the polio crusade. FDR believed that people could solve any problem if they worked together. Comedian Eddie Cantor coined the phrase "March of Dimes" (playing on the popular newsreel feature "The March of Time"), appealing to radio listeners all over the country to send their dimes directly to the White House. The campaign proved to be hugely successful. The National Foundation officially changed its name to the March of Dimes in 1979.
The Polio vaccine was funded by The March of Dimes. As a result of the polio vaccine there has not been a new case of polio in the western hemisphere since 1991. Since the vaccine was found, the Mach of Dimes changed their mission to research and programs to help save babies from prematurity, birth defects and low birth weight.

March of Dimes Milestones and Timeline
January 1938
President Franklin Delano Roosevelt establishes the National Foundation for Infantile Paralysis - a unique partnership of scientists and volunteers - to conquer polio.
Eddie Cantor creates the first grassroots fund-raiser for the National Foundation, asking the public to send dimes to President Roosevelt at the White House. The effort was called the March of Dimes, which later became part of the official name of the foundation.

March of Dimes first research grant goes to Yale University.

1939
March of Dimes first chapter is established in Coshocton, Ohio.

1941
March of Dimes provides first iron lung to assist polio victims.

1949
March of Dimes selects Dr. Jonas Salk to lead research on classifying polio viruses.

1950
First Mothers March launched in Phoenix, Arizona., to raise emergency funding during a serious polio outbreak.

1952
Virginia Apgar, M.D., develops the Apgar Score, a clinical system for evaluating an infant's physical condition at birth. By the end of the decade, it becomes the standard practice in obstetrical care throughout the world, and remains so today. Her scoring system was the crucial first step in the evolution of medical subspecialties focused on newborns. Dr. Apgar worked from 1959 until her death in 1974 for the March of Dimes.

1953
Dr. Salk confirms the feasibility of a killed-virus vaccine for polio.

1954
March of Dimes runs field trials of Salk vaccine with 1,830,000 schoolchildren participating. The test is the largest peacetime mobilization of volunteers in history.

April 12, 1955
Salk vaccine is declared "safe, effective and potent."

1958
March of Dimes initiates the first concerted efforts to save babies from birth defects.

1960
March of Dimes establishes The Salk Institute for Biological Studies in La Jolla, Calif.

1961
Earlier March of Dimes work pays off in the development of the PKU test. This allows some forms of mental retardation to be prevented.

1962
Oral polio vaccine, developed by Dr. Albert Sabin with funding from the March of Dimes is licensed.

1968
March of Dimes funds the first successful bone marrow transplant to correct a birth defect.

1970
First WalkAmerica events take place in San Antonio, Texas, and Columbus, Ohio.

1973
March of Dimes researchers discover that alcohol consumption during pregnancy causes birth defects.

March of Dimes funds first in utero treatment for a birth defect.

April Murphy is first baby to be successfully treated in the womb for birth defects

1976
March of Dimes calls for creation of a regional system of newborn intensive care units to save sick babies.

1978
March of Dimes funds first prenatal diagnosis of sickle cell anemia.

1981
March of Dimes funds first successful surgery to correct a urinary blockage in an unborn baby.

1982
March of Dimes launches "Babies & You" program to bring prenatal education to the workplace.

1984
March of Dimes funds development of a newborn screening test for biotinidase deficiency, which can cause mental retardation and death unless treated promptly.

1985
March of Dimes funds research leading to the use of surfactant to treat respiratory distress syndrome(RDS). Danielle Cofey is one of first infants to be treated with life-saving surfactant therapy.

1989
March of Dimes grantee performs the first in utero surgery to repair a diaphragmatic hernia in an unborn baby.

Blake Schultz is first baby to undergo lifesaving fetal surgery to correct a diaphragmatic hernia.

1991
March of Dimes funds research showing that delivering babies with spina bifida by cesarean section may save them from paralysis.

March of Dimes grantees identify genes responsible for Marfan syndrome -- an inherited disorder of connective tissue, and fragile X syndrome -- the most common known familial cause of mental retardation.

1992
March of Dimes grantee locates a gene connected with 70 to 80 percent of cases of acute leukemia in infants.

1993
March of Dimes grantees clone gene responsible for X-linked adrenoleukodystrophy — a rare and often fatal hereditary disease characterized by adrenal failure and paralysis.

Ashanthi DeSilva and Cynthia Cutshall become first Americans to undergo gene therapy.

1994
March of Dimes launches nationwide campaign urging women to take the B vitamin folic acid to help prevent neural tube birth defects.

1995
March of Dimes grantees share Nobel Prize for research on fruit flies that identified master genes that control the early structural development of the body.

March of Dimes funds research showing that treating certain infections with antibiotics reduces the risk of preterm delivery.

1996
March of Dimes-supported research on nitric oxide leads to a new treatment to save premature babies from persistent pulmonary hypertension, a deadly lung disorder.

March of Dimes volunteers help secure passage of the Mothers' and Newborns' Health Protection Act, guaranteeing a minimum hospital stay of 48 hours following delivery.

With March of Dimes support, the FDA approves fortification of grain products with folic acid.

1997
March of Dimes grantee successfully uses deactivated HIV viruses as delivery systems for healthy genes in gene therapy.

March of Dimes grantee finds that gene abnormalities in the development of certain enzymes involved in folic acid metabolism may contribute to susceptibility to neural tube defects.

March of Dimes grantee identifies a gene for Alagille syndrome, a rare inherited disorder that causes abnormalities in different parts of the body.

March of Dimes volunteers help secure passage of the State Children's Health Insurance Program (S-CHIP), to provide health care coverage for up to 5 million children.

1998
March of Dimes volunteers help secure passage of the Birth Defects Prevention Act, establishing a nationwide network of birth defects monitoring and research programs.

March of Dimes research leads to one of the first successful surgeries to treat spina bifida before birth. Noah Kipfmiller is one of the first babies to undergo this pioneering open-womb surgical procedure.

1999
March of Dimes grantees successfully use gene therapy to treat hemophilia and retinitis pigmentosa in the lab.

2000
March of Dimes volunteers developed key provisions and worked to enact The Children's Health Act of 2000. The law creates a National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, and helps states to expand newborn screening.

2001
March of Dimes launches a partnership with the Dutch-based de Waal Foundation to provide prenatal care and birth defects prevention information to women in Ecuador, Honduras and Nicaragua.

2002
March of Dimes grantees win the Nobel Prize in Medicine or Physiology for their discoveries on genetic regulation of organ development and programmed cell death (apoptosis).

The March of Dimes promotion of folic acid fortification and awareness contributed to a 21 percent decline in the occurrence of neural tube birth defects between 1995 - 2000.

2003
March of Dimes launches a multimillion dollar, multiyear campaign to prevent premature birth and raise awareness of its serious consequences.

2005
The North Building at The Salk Institute for Biological Studies is dedicated to March of Dimes volunteers, as part of the 50th anniversary of the polio vaccine.

2006
Nobel Prizes are awarded to March of Dimes grantees Drs. Roger D. Kornberg and Craig Mello for groundbreaking discoveries on RNA and its role in human development.

March of Dimes advocacy leads to passage of the PREEMIE Act to bring together experts from the private and public sectors to speed development of prevention strategies for preterm labor and delivery.

2007
March of Dimes volunteer efforts lead to increase in newborn screening. Nearly 90 percent of all babies born in the U.S. – more than double the percentage in 2005 – live in states that require screening for at least 21 of 29 life-threatening but treatable disorders.


If you read this timeline, without a doubt, there is something that the March of Dimes has helped make possible for you, your mother, sister,child or someone close to you. Without the March of Dimes funds research leading to the use of surfactant to treat respiratory distress syndrome, my daughters would not have been able to live as long as they did. Because of the surfactant I got those precious memories I have of my daughters. This is one reason I find it so important and so near to my heart to help raise funds for The March of Dimes. Won't you please help me help The March of Dimes?? You can log onto my personal page at www.marchforbabies.org/moore113 or click on my March for Babies widget on the right side of my page and make a donation online. It is fast, easy and secure! Or join our team and walk with us! Thank you for helping me give every baby a healthy start!

Tuesday, March 17, 2009

Happy St. Patricks Day!


Some of you may know, I am very big on holidays. Actually anything that can be celebrated! I have been known, a time or two, to go a bit over board with parties. I spend way too much money and time and get VERY into it. My sons birthday parties are the worst, but they always end up great!I love having get togethers, BBQ's, parties, whatever! The work is always worth it. Well St. Patty's day is no exception! Here are a few pictures from throughout the day. We had fun!


There is a very funny story behind these gold coins he has. When he got in the car from me picking him up from school today, this is what he said.
Me: "What did you do at school today?"
Him: "Ummmmmm, we made those green smoothie things, ya know with the green stuff and green ice cream and whip cream...."
Me: "Oh Fun! Yummy!"
Him: "yeah, and we went on a hunt for gold coins. We had clues and had to find where the Canadians hide the coins!!!"
Me: " Uh, What?? The Canadians??
Him: "You know the little guys that play the tricks on you and they have gold coins?"
Me: "ohhhhhh, you mean leprechauns??" (laughing uncontrollably, seriously I had tears!)
Him: "oh yeah!! Leprechauns!!" (giggle giggle)

We had a very yummy lunch!
Jaden's Pizza with special St. Pattys green sauce! (It was pureed spinach and he ate it!!!) whoo hooo 2 points for Mom! Green milk and green grapes.


My Pizza

Dinner of Corned beef and Cabbage

Our Green Jello Dessert!

Wednesday, March 11, 2009

Questions??

I get asked a lot of questions and put in a lot of awkward situations since losing my daughters. I thought that I would give MY thoughts and answers to you, in case you are ever put in the situation where you someone you know has gone through the kind of loss I have. Kind of a Do's and Don'ts. Every situation and person in different, so this is just how I feel.

Bringing a new baby around someone who has just lost their baby or gone through a miscarriage. For me, my "trigger" is baby girls. I have a very difficult time being around them. It reminds me of what I have lost and what I want to so badly. My advice on this situation would be to just use caution and put thought into how it may make the grieving mother feel. Put yourself in her shoes. I was put in a very uncomfortable situation one day when I ran into someone I hadn't seen in a while, with her 4 month old. She kept going on and on about what her baby was doing and showing me pictures, this person was very aware of what I had just gone through. All I could do was smile and nod, then went home and cried the rest of the night.

Should you invite a grieving mother to a baby shower, birthday party, etc.? My answer to this is YES!! I have been left out of a few things since losing the girls. There is nothing worse in a situation like mine than feeling alone. I find myself feeling alone a lot. I know the intention is to not upset your friend, but when they find out they weren't invited later, it hurts. My advice would be to send an invitation, but maybe add a note telling them you understand if they don't come. That way, there is not guilt on either side. I know I would like to make the decision myself and not have it made for me.

Should you tell a grieving mother if you are pregnant?? I have only had to deal with this indirectly. The person is very close to me but didn't tell me, I found out another way. I think you should tell the person if you are close to them, but don't be upset if they don't jump up and down and get excited for you. They will be jealous and most likely it will hurt them, but I think its better to tell them yourself.

Don't make a grieving mothers loss about you. It's not. Because I know a lot of people that I have talked to that turn my loss into how THEY feel about it. Not to be rude, but I don't care. I know that my girls touched A LOT of people and that their death affected many people. But I am sure there are other people to talk to about it besides me. I don't want to relive it over and over. I want to be the one to bring it up, not someone else. I do not in anyway mean for this to sound mean, and I appreciate how my girls touched lives. It just hurts to talk about.

These are just a couple of the things I deal with the most and wanted to get off my chest. If you want to ask me a question feel free to ask!